I am in the middle of reading “Ghost Boy,” the true story of and by a young man who was trapped in his body for 10 years, unable to move or communicate, until he slowly started to regain full consciousness and some limited movement. What he experienced is horrifying. What he accomplished is astounding. I’d strongly recommend this book for EVERYONE who has ANY contact with children who have significant disabilities. That means parents, teachers, aides, bus drivers, therapists, caregivers, and everyone in the medical profession as there are lessons to be learned and applied to rehab patients and aging adults, as well. If I had my way, this book would be part of the college curricula for educators and health care providers. It would make a good inservice or staff meeting discussion, too.
Here’s the link to the book:
Here’s a link to a podcast on NPR: http://www.npr.org/2015/01/09/375928581/locked-in-man
This book is a harsh and uplifting reminder that we should always presume competence, and treat ALL people with humanity and respect.
Alert to folks from in and around Philly: I was delighted to see Diane Bryen and the Temple University ACES program mentioned in this book. What a far reach, from PA to South Africa, a tribute to an exemplary AAC leader and program!